For the past two years Greg Crawford, Dean of Science at Notre Dame, has dedicated his summers to raising awareness of Niemann-Pick Type C (NPC) disease, a rare and fatal neurodegenerative disease that took the lives of three of Coach Ara Parseghian’s grandchildren. He has set out on two cross-country bike rides, traveling from Tucson, AZ to Notre Dame, IN in 2010 and from Boston, MA to Dallas, TX in 2011 to recognize the partnership between the University of Notre Dame and the Ara Parseghian Medical Research Foundation and rare disease research at Notre Dame.
This summer, he is on another cross-country bike ride to raise awareness of research to find a cure for NPC disease and is riding from Boston, MA to Pebble Beach, CA, arriving in time for the Parseghian Classic at Pebble Beach which will raise funds for research to find a cure for NPC.
Each year, Greg has been fortunate to meet with many alumni and friends of Notre Dame as well as all who support these efforts to raise awareness and funds for rare disease research. Last summer, he met with many families who have been affected by this disease as well as with the physicians treating the children with NPC and researchers who are searching for a cure. This summer, he will continue to meet with more of the families along the journey.
It is the exuberance, faith, and courage of these families, physicians, and researchers as well as the support from the Notre Dame community that motivates him to ride every day.
Please support Greg by following his blog http://blogs.nd.edu/gregcrawford/. On May 30th he will be passing through the Chicago area so please keep him in your thoughts and Prayers.